Jacob Quinn DeMeis-Dullea
February 15th, 1997 ~ June 22nd, 2003

In The Garden


Jacob, 6 1/2 yrs ~ NP-C, passed today with
his mother, father, little brother and dog at home.

We loved him more than anything as we know he loved us. We will miss him
but we know that he is always with us as long as we can recall a favorite
memory, song or touch we shared.

He was all the best parts of us and he embodied how a life should be
celebrated, not mourned, no matter the physical limitations.

We love you Jacob!

Always ~ Mama Miqelle, Daddy Bob, Brother Kiernan and puppy Oslo.

The Day of Southeastern Connecticut
Published on June 25th , 2003

Pawcatuck — Jacob Quinn DeMeis-Dullea, age 6 1/2, was released from his body on Sunday, June 22nd. He passed away at home with his mother, his father, his little brother and his beloved pets.

Amongst those whose hearts he filled with joy are his grandparents, great-grandparents, aunts, uncles, cousins and the Fort Collins, Colo., and Stonington, Conn., communities. Jacob or "J-Muffin," as he was called by friends, had been battling with a rare genetic disease, Niemann-Pick Type C, that affects mainly children.

Jakey's life was not valued for the number of years he spent with us but for the number of hearts he touched.

Go run and climb now, Jacob. We love you.

The family will greet relatives and friends from 6 to 8 p.m. Thursday at The Dinoto Funeral Home, 17 Pearl St., Mystic. A memorial service will be held at 2 p.m. Friday at Jacob's residence in Pawcatuck, Conn. Please bring a picture or a special memento that you shared with Jacob to the service.

In lieu of flowers, Jacob's parents ask that donations be sent to the following organizations; The Ara Parseghian Medical Research Foundation, 3530 E. Campo Abierto Suite 105, Tuscon, AZ 85718-3327; The National Niemann-Pick Disease Foundation, P.O. Box 310 Ft. Atkinson, WI 53538; or The Stonington Pre-School Program, Stonington Business Office, P.O. Box 479, Old Mystic, CT 06372 Please add to any contribution, "In Memory of Jacob Quinn DeMeis-Dullea."

For online directions, obituary information, and to send a condolence to the family, please visit www.dinotofuneral.com .

 View Condolences from Dinoto GuestBook 

Our dear Jacob...

Hold on little man, hold on
Your short time here has gone.
A lifetime of love you gave us all
Hold on dear tight and march most tall.
Beyond the clouds, beyond the stars
The gifts you gave will heal my scars.

I held you close on your first day
The pain today, so far away.
Colorado nights, they sang you to sleep
Mom and dad, and a fireplace seat.
News of worry, of disbelief
Came through the line igniting our grief.

Come see our home
Come live your life
With all who love you
Strangers alike.
You taught us well, there is no doubt
How to be strong, how not to give out.

Hold close your people, all have been taught
Hold close the time, hold close our thoughts.
As far away as you may be
I know you're there and hearing me.
Hold on like we, continue to teach
Hold on JQ, our hearts you reach... 

All my love,

Uncle Mark

Dear Miqelle and Bob,

Bryanna and I were actually going to call Jacob and you guys tonight (Sunday)
and before we did, I just saw your email about Jacob.

Bryanna and I are together right now sending you this email reply. We loved
Jacob very much and always enjoyed dropping by to see you guys. Even though
Jacob could not talk, it felt as if he enjoyed our company and we his. I
remember that Bryanna did make him laugh that time she sang to him. He has
touched our lives in a special way and remains always in our heart and memory.

While we have tears because we will miss him, we are happy that he will no longer
battle in his fight. May all of you find peace in your lives to stay strong.
He knew that you were there for him and you gave him the comfort and love in
his passing with all of you by his side.

It is a privilege to know all of you. You are a beautiful family and I
cherish your friendship much.

We love you and when you feel you can, please call us or email us. Love to
Kiernan and dog Oslo.

Judy and Bryanna DeSouza

Dear Robert and Miqelle,

I know there are no words nor motions that can help
you fell comforted at this moment. Just know that we, the Kehoe family are with
you in body mind and spirit. Please let us know of the funeral arrangements.
I am working Monday 3-11, Tues 7-3, with Wednesday off. I hope I can be
present in some form to let Jacob know he will be joined with Graham in the
next phase of life. May I leave with you this poem quote:

"Your absence has gone through me like thread through a needle-----
Everything I do is stitched with your color"..........
W.S. Merwin

I look for Graham in the clouds, in the freedom of birds and butterflies, I
find solace in these things, yet I want him back, I want him with me, I know
the pain you are feeling and somehow I extend a hug beyond all hugs.


Jacob…. your sparkling eyes and beautiful smile spoke more than words could ever say.
For all the wonderful moments we shared in so brief a span of time we will be forever grateful.

With Our Eternal Love…GranMa & GranPa

Dear Miqelle, Bob, & Kiernan,

So sorry to hear of your tremendous loss...Our hearts
and thoughts are with you as we grieve with your family.
I know we all feel the sadness each time one of "our"
children falls to this disease.

Please know you are in our prayers,

The Teller Family

Bob and Miqelle….you were given an angel to love and cherish for such a short time,
know that he is at peace and will be remembered and loved for a life time.
My prayers are with you.

Aunt Kathy

Dear Dullea family,

I am so sorry for your loss. We lost our sweet Amy April 24th '03.
There are no words to express the sadness at a time like this.
They say time heals all wounds. I pray that is true. It is to soon for us to
 know. Memories are our best friend now. Memories, country music, which she
 loved, and purple, her favorite color. Our thoughts are with you. Sincerely,

Pam Havener

 Bobby, Miqelle & Kiernan,

 Our thoughts and prayers are with you during this time. Jacob will be missed.
 He was a beautiful boy and his spirit will continue to live on and inspire others. With love,

Uncle Walter & Deb

I have Jacob's picture on my bulletin board, and have since you all sent it to me 4 years ago when
I first met you all at the Family Conference in North Carolina. God bless you all during this time.
I am leaving for 10 days to join my family on vacation in Montana. I will call you in a couple of
weeks to visit. You’re in my thoughts and prayers. God Bless,

Glen Shepherd
Ara Parseghian Medical Research Foundation

Dear Dullea Family,

 I was so sorry to hear of the passing of your precious Jacob. My heart and
 spirit go out to you. May God meet you at your point of need during this
 very difficult loss in your life.

Hunt Ozmer

moments……in Time

…… i remember Jacob……His brilliant smile……
His sparkling eyes…...His magnificent laughter

i remember Jacob……
on our little strolls……in the cool shade ……
through wilcox park……to feed the ducks

on a most sunny day……splashing in the waves……
playing with the sand……at misquamicut beach

having lunch together……a gentle breeze……
on the waterfront……in stonington village

our little picnics……under the great elms……
at mccook park……and riding on the swings

i remember Jacob……
holding my hand……rubbing my hair……
those many times…… while watching His tv friends

these are but a few……of shared moments……
just the two of us……that passed too quickly

and i remember Jacob……all the unshared moments……
that could have been……that will never be

i will Always remember Jacob……i miss You……
so very much……with All My Heart

Jacob's Reach

Jacob | Family Background | The Disease

 Jacob's Album | Campaign Supporters   | Jakey's Brothers

Ara Parseghian Medical Research Foundation | National Niemann-Pick Disease Foundation

In Memory